
Option B
“Option A is not available. So let’s just kick the shit out of Option B.”
In January 2023, I began to realize Option A (life as I knew it) was about to change. A diagnosis of multiple myeloma would force me to come up with an Option B. This website is my online journal, where I can write, share video messages, and stay in touch with friends and family.
Live Wide.
My daughter gave me this shirt for Father’s Day. This moto is a reminder to find ways to live wide every day. Live life to the fullest, if you will. Make a positive difference every day in others lives. Be the best patient I can be no matter what. I don’t always succeed, but I usually try!
The Fly that Saved My Life
Just over three years ago, the fly that saved my life bit me on this spot. I cursed that fly for six months. But when they found my tumor in January 2023, I was pretty thankful that it bit me. I am now 2 1/2 years into treatment. Without that fly bite, I probably wouldn’t be in treatment at all right now. But the cancer would’ve kept growing. One more bone marrow, biopsy result of zero and I’ll get that little bastard tattooed on my thigh. Ha ha!
Just another day at the office
My office for this afternoon. I actually can chew through a lot of emails sitting in this chair. While it is tough to get much project work done, email is perfect. The only place I can chew through more email in less time is on an airplane. I would recommend doing the airplane route as opposed to getting cancer, but that is just me.
“First, Outride Cancer”
My moto for the last 18 months has been: “Don’t Let the Hard Days Win”. My other moto is: “1st Out Ride Cancer”. I am completely convinced that I can, through not only medicine, but also diet, meditation, and being in the best physical condition I can. Being in remission, is it tough to remember that I am NOT normal. So, when I lose focus on these things, this saying brings me back. And now I have a shirt where the bike is kind of blended in, but is completely obvious when I focus. Exactly what I need.
Party Pants
My Dad bought me this shirt a few months ago. The bottles say: PARTY PANTS. The joke here is that I don’t drink. I never have. And I have maybe been to three parties in my entire life. He knows that and got me the shirt anyway. Ha!
I’m Back!
Back in Michigan. Back in the Chair. Back in a new shirt!
I start the restaging process this week. PET scan tomorrow, bone marrow biopsy on Wednesday. The goal is 0. My last score was 12. Hopefully the drop in body fat along with the drugs will get me there. (I was mostly good! Ha!)
What a week, already!
As I write this post at 9:15 am on Monday, it’s already been a week! Travel, healthy eating (pizza, of course!), hydration, low ACN, and travel again! Time for a nap—NOT!
Option B Tee
I have received 4 or 5 shirts from various people, but this was the first one that included anything about Option B. Super cool to get this shirt, be able to wear it at treatment, and still feel like I am honoring that thesis. Thank you Michael (banker) and Sheryl Sandberg (author).
Super Fast Mode
Hello Monday! Clearly I am in Super Fast mode today because I did not proof the picture before I left treatment. What is with all the wrinkles? I know I am getting older, but I did not know I was this bad! And I wanted to show off my Route 66 shirt , but I cut off the Route 66 logo. Oh well! Treatment went well!
Year 3 begins.
Year 1 was a fire drill and getting everything organized and in perspective. Year 2 has been about getting our life back. Both have been successful. Year 3 is all about getting rid of baggage. And along the way, I fully expect to get rid of this last 12 cells per million and be in complete remission.
2055, here I come!
First treatment of the new year. It only took 4 stabs to get the IV going. Ha! Easy day for me. Tough start to the day for my nurse.
Thankful AND Tough
In the past I have worn bright shirts to treatment in the hope of cheering someone else up. Today I realized I needed the shirt for me.
I Know Jack!
I messaged Jack’s parents I told them that I wear colorful or meaningful shirts to every treatment session. If they sent me a shirt, I could do both - colorful AND meaningful. Here it is, my brand new “I Know Jack” shirt!
Comfort Kills
Treatment on Monday was tough. I’d recently reconnected with Roger who used to be a co-worker. He had a different kind of blood cancer, but seemed to be on the same treatment schedule as me. I found out that Roger died 8 days after our last treatment together.
Cindy Made My Day
As Jeri and I were about to get off the ship in Willemstad, Curacao to explore, I got a message from Cindy at the Ottawa County Health Department. She wondered if I had finished the last dose of my treatment for latent tuberculosis. I forgot to message her, but she did not forget me. THANK YOU, CINDY!
What a difference a year makes
As the ship we are on pulled out of Fort Lauderdale, I was filled with emotion that I was not expecting. Not enough to actually elicit a tear, but enough to kind of take my breath away. Even 5 days later, the contrast between March of 2023 and March of 2024 causes my breath to catch just a little.